Tuesday, 19 June 2012

Update + Positive GP Appointment

I'll try and do a proper catch up post, but in summary a lot has changed since this time last year. I've pretty much knocked ED behaviour on the head and I'm back to a "safe" weight/BMI. I've recently been diagnosed with bipolar disorder after an episode in March.

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I saw my GP today to get another quetiapine prescription.

I hadn't booked a longer than normal appointment or anything, but she chatted to me for ages. She said that she could tell as soon as she saw me that I was doing really well in terms of mood stability. (The last time she saw me was in March and I'd been hypomanic and starting to verge on mania/psychosis). I talked about how I was doing a lot of reading about bipolar disorder and trying to come to terms with the diagnosis. I knew a few years ago I had been diagnosed with borderline personality disorder and I asked about this as it's something I'd been thinking about. She said that it was now thought that was the wrong diagnosis and bipolar is right and it was fairly typical for a bipolar diagnosis to take a long time.

She asked whether my psychiatrist had discussed long term plans for medication and I said I was hoping to try and manage without long term medication and how I'd prefer to only take medication if I got early warning signs of an episode. My psychiatrist had mentioned this as a possibility before but had said he wanted to wait until my mood had stabilised before making decisions with me. My GP didn't dismiss the idea and said that I had responded really well/quickly to medication when I got ill in March and that she thought I generally retained good insight (which was nice to hear) so didn't see why it wouldn't be managable. She then went on to talk about some of the benefits for long term medication. But it was a relief to know my GP would be supportive of whatever decision I made with my psychiatrist. I also discussed how I was trying to change my lifestyle (stopping recreational drugs, cutting down caffiene and alcohol).

I saw her add a lot of what I said into my notes. "NoN is doing really well, is managing triggers and has very good insight". Awesome!

Sunday, 12 June 2011

Giving up seems like an excellent proposition.

I've worked really hard on eating these last few days, though I did purge once yesterday. I've been adding a few pieces of chocolate to my diet, which was very difficult, but obviously adds to the total number of calories I'm consuming. If my calculations are correct I've actually been getting the right amount of calories since my last post. If the scales were right this morning, however, I've lost another pound. Obviously it could just be down to dehydration, but I guess the fact that I'm not gaining any weight at all, and potentially still losing a bit, means that despite all my efforts I'm still not eating enough.

It's ridiculous as I feel like I'm constantly eating at the moment and my abdomen feels swollen, huge and disgusting. How on earth can this not be enough food? How on earth am I meant to eat any more? How on earth can I not have put on weight when I look so huge. I feel in a constant state of panic/anxiety. This morning after eating breakfast I sat down to read the news and the world felt like it was spinning and I felt so sick. The more I try and fight the thoughts and eat and not purge the worse it gets. I guess there's no option but to keep trying. Though giving up and going back to secretly purging regularly seems so attractive right now.

Thursday, 9 June 2011

Can't trust myself

My weight has been stable so far this week. I've done ok with eating except for today when I've failed miserably at not purging. Boyfriend is out with friends this evening and it's kind of left me to my own devices. I'd agreed a meal that I would eat with him. It just needed heating up. But I think because it didn't feel that there was the accountability, someone who'd notice if I went straight to the bathroom, I purged almost immediately afterwards. So I tried to make something else but purged that. And then I gave up. I think in this case not eating is less destructive than repetitive purging. 

Maybe when boyfriend gets back I'll try and eat something with him. But I don't think I'll tell him about the purging. I'll be honest and that's partly as he'll shout/be disappointed/be angry and then I'll feel bad. But it's also partly because I don't want him to feel that I can't be trusted to eat by myself. And connected with that I don't want him to feel a responsibility for looking after me and making sure I eat and don't purge.

I'm nearly 30 for f**ks sake. I don't want to have to rely on other people. I hate the fact that I need tablets to keep my mood stable. I hate the fact that I have to see a psychiatrist and that I'm waiting to see a psychologist. I hate the fact that apparently I can't rely on me.

Monday, 6 June 2011

Counting points the none WeightWatcher way

After posting yesterday I did managed to eat about another 700 calories. I made a mushroom and aubergine stroganoff with rice and garlic bread. I don't know exactly how many calories as I've taken various ingredients out of there original packages as I was getting far to hung up on calorie content. Now the packaging reads things like "rice, brown, 20 mins to boil", "tomatos, chopped" and "garlic bread, slices, 8 mins to grill". I'm trying to focus on what is actually the correct amount/ratio of each ingredient rather than what my thoughts tell me is ok.

[1 point for eating something when I didn't know the exact calorie content]

And today I've managed 1227 so far. It would have been less as I really wanted to skip lunch, but I knew a friend was going to be in town today, and when I started thinking about throwing my lunch away I made plans to meet her and have our packed lunches in a nearby park.

[1 point for making time for relaxing and 1 point for stopping myself from skipping lunch]

But I've really no idea where I'm going to get any more from today. I keep running over what we have in the cupboards and trying to think about what I feel ok with. But either way I've still consumed more than last week and I guess it's a work in progress.

Sunday, 5 June 2011

Eating Enough

I did purge yesterday. But I tried to be proactive in battling it. We went out to visit friends last night and it involved about 45mins on buses to get there. Just before we left I made myself eat an entire bag of mixed nuts and fruit (about 800 calories worth) knowing that I probably wouldn't have the opportunity to get rid of it. It played on my mind all night and I was only slightly reassured when I weighed myself this morning to see that the number hadn't changed. But it has given me the ability to convince myself to eat a bit more today. I'm managed some fruit, some bran cereal with milk, and a piece of toast with light spread. I've calculated it to be 429 calories, which is above my batting average for this point in the day.

With the 800 from the dried fruit/nuts I think I managed just under 2000 calories yesterday, for the first time in months. This isn't really enough to gain weight back, but if I can keep it up I could try and not lose anymore until I can cope with adding a bit more. I'm by no means seriously underweight and if I can stay on top of this and keep a lid on the purging hopefully I can manage. I'll try and get a supply of nuts/dried fruit in as I think that's something I could trust and use to make up calories on the days when I do purge or not manage to eat enough in normal meals. Fingers crossed.

Saturday, 4 June 2011

Start Again

I've decided to try and see today as a fresh start. I've been mentally beating myself up and berating myself over my slip back into purging the last couple of days. I'm going to (try and) stop doing that - both the purging and the beating myself up if I fail. When I saw my psychiatrist I had already gone a couple of days without purging and they said (and this is completely paraphrased, but how I understood it) that the early stages of trying to combat any kind of self-destructive behaviour would always be the part where you were most vulnerable to giving in to the destructive urges, and that I should be gentle with myself and get support if I need it.

Piling more self hate on top of what's already there is just making it harder to fight and I'm just going to try and ignore the slips and move forward. When I finally stopped self harm, it wasn't an overnight miracle, it took months of gradually harming less and less. Prehaps I'm naive, but I expected, wanted, this to be different. Flicking a switch that turns off the ED thoughts and the behaviours magically stop. So the "new" paradigm is that although it's not ok to slip, it's not the end of the world and doesn't mean I've stopped trying to fight this.

This morning when I woke up I felt really crap and partner wanted to eat fried eggs, toast and beans for breakfast!!! I knew that if I ate that I would find it very difficult to resist purging. But I'm also really really trying to eat as I know I need to try and gain back about 6lbs to be back at a minimum healthy weight. So I made breakfast for us both. And I didn't eat it all, but I did manage to eat 3 bites of bread with a bit of egg on it. I had to stop then, but I'm pleased that I managed to eat egg, fried egg at that, and bread. Both of which are not salad (which is all I really feel ok with eating without purging). We've agreed on something light for lunch so I'm hoping that will be easier and that I'll be able to eat more.

Friday, 3 June 2011

Purging again

I'm hoping it's just a temporary blip but I've been purging again the last couple of days. I was trying so hard. Trying to actually eat a "reasonable" amount of calories. But the amount I know logically I should aim to be eating just seems so utterly unreasonable and when I try and eat more the urge to get rid of it is unconquerable. Or at least it feels like it is. 

The thing that pushed me over the edge yesterday was a small bowl of icecream. I'd had 190 calories while at work and then ate a small evening meal (bulking up my plate with salad to hide how little I was eating). Then partner, who is now in the "you need a gain a few pounds" camp gave me a bowl of icecream. I tried so hard not to, but I ended up purging. Though I did force myself to eat a piece of toast and a raw mushroom to try and replace some of the calories. 

I think giving in that one time made it a lot harder. Tonight I couldn't resist the urge. *sigh*

Though I'm trying to remind myself it took me several false starts to quit smoking... so maybe next time will be the charm.

Wednesday, 1 June 2011

No title

Just a very brief update today as I have plans tonight, but I want to get back in the "habbit" of posting here as I think it will help order my thoughts. My psychiatrist suggested trying to find things to focus on outside myself and try and treat/be nice to myself. So tonight I'm going to spend some time with a friend and watch movies.

Today has been more of the same in terms of eating i.e. not really happening to any great extent. Oh well, I guess I'll try again tomorrow. I might try making myself a packed lunch of perrishable food as I think I'd feel guilty about making it and throwing it away and maybe that guilt will be more powerful than the anxiety I feel at eating it. Maybe. In positive news it is now 12 days since I last purged. Which is about 9 more than my last attempt at stopping purging.

Tuesday, 31 May 2011

The Good, The Bad and The Update.

It's been a while since I posted here and I really have missed having an outlet where I can talk honestly about what's going on in my head. After my last post I managed to keep an even keel for several weeks and then recently everything's deteriorated again. It was almost like I ran out of fuel and couldn't keep "recovery" moving forward any further. Currently things are worse in some ways but better in others.

In the things-are-better camp - I finally gathered the courage and told my boyfriend what was going on i.e. purging/ED thoughts. He didn't react that well at first, but has been very supportive since then. He told me I had to tell my psychiatrist, which I managed to do a couple of weeks ago. It wasn't as awful as I thought it would be, telling either boyfriend or psychiatrist, that is. They didn't over or under react, which I think was my biggest worry. I'm being referred to a clinical psychologist as my doctor thinks my anxiety is behind a lot of the self destructive behaviours I've relied on for years. But I have no idea of the timelines for this.

So, being able to open up to people in real life has been one of the positive changes. Another positive is that since telling my boyfriend I've managed to keep a lid on the purging. He was shocked and amazed that I'd managed to get away with it for so long, and since I'm apparently so "good" at hiding it I probably could carry on even at home, but him knowing has made it easier to resist the urges.

On other positives, things at work are currently going well and my concentration seems actually quite good, despite background obsession with ED/food related type stuff. My house and garden are for once fairly tidy and organised - partly because I'm distracting myself from purging thoughts by cleaning, and also YAY SPRING IS HERE!!!

On the negative side of things the lack of purging has left my finding it very hard to actually eat anything. Because I don't feel that I have the option of purging anymore it's very very difficult to eat without complete panic. I'm not really eating at work at all and at home I'm either pretending to eat (by leaving out plates with crumbs/dirty cutlery etc) or putting very little on my plate at meal time and then sneaking half of that to the pets. I also lied to the psychiatrist about my weight/weightloss and said that I wasn't purging to try and lose weight, it was more about decreasing my anxiety/stress. Which is only partly true, but I didn't really want anyone paying too much attention to my weight.

My antidepressants have been increased back to their previous dose at my request and with the agreement of my psychiatrist. Though what I (deliberately) didn't say to my doctor is that the reason I requested upping the dose is because they have a massive appetite suppressant affect on me. Since upping the dose a couple of weeks ago I've lost 6lbs, despite not purging, and this has dropped my BMI to 17.5. Obviously this pleases me in a ED-type way and worries me in a i'm-sane-really-and-know-this-shouldn't-please-me-type way. I'm also now two pounds away from a weight that I said "I'd stop if I weighed that". And part of me doesn't want to test that theory, but I don't really feel as if I have a choice.

This, I guess, leaves me with waiting for the psycologist referral to come through and trying to eat and not purge. I hope that the steps in a positive direction outdistance the steps in a negative direction, but I think that only time will tell.

Friday, 8 April 2011

Bouncing back again

I’ve been absent from the internet for a few weeks. I hadn’t really talked about it on this blog, but I’d been surfing a lot of eating disorder websites and purposely triggering ED thoughts. I swear I’m my own worst enemy. Well, actually, the ED is kind of my worst enemy. I kept telling myself I was looking to talk to people who understood so I would feel less alone with all this. Just before I left the web my BMI dropped below a healthy level for the first time in years and I finally twigged what was happening and made myself take a step back. I’ve had a good couple of weeks now and have been sticking to a (self-devised) eating plan. It’s taken about 3 weeks but I am back to just over 18.5 again, which is where I was about a month ago, and hope I can maintain this at least. I hate how split down the middle I feel. Part of me (the part that is me, I hope) wants to be healthy. But part of my head... it really fights what I know is the right thing to do. So, I’ve pushed the scales to the furthest corner of the darkest cupboard. I’ve got a daily meal plan, though at the moment I’m mostly sticking to the same things and I‘m embarrassingly making up my calorie count and reducing my anxiety with alcohol. And I’m also still purging occasionally.

One of my last entries before I absented myself from the web was about an upcoming psychiatrist appointment. I saw my shrink and did manage to start talking about what was going on. He noticed that I’d lost weight and asked if I was ok, though he asked it more in a context of drug use. I did try and explain what was going on (with the purging and ED thoughts) but I freaked out and said I’d “just been dieting”. However it was partly that appointment that made me realize just out of control this was. So even if I didn’t actually talk to my shrink it at least had a positive effect.

Anyway... I’m happy to be back on my blog with some fairly positive news - that this is the first time since last October that I’ve gained weight, even if it is only a couple of pounds. I just need to try and keep this up and not lose it again.

So my goals are to keep to my plan to not gain or lose. And try and stop purging. And try to speak to my GP/shrink to see if I can try some meds... or anything really, to deal with how stressed out I feel.

Wednesday, 16 March 2011

rejection and being triggered

I had a job interview recently and found out today that I didn’t get the job. I’ve got a few other irons in the fire but it still was a bit upsetting. I really, really, wanted this post. The eating disorder/self hate thoughts have been really bad since then. Even though I can spot what’s triggered the thoughts it’s not been making it any easier. And I’ve started a slightly vicious cycle of triggering myself further. I’ve spent all my free time today reading diet sites and watching diet programmes (Channel 4OD Cook Yourself Thin – seriously… how annoying is that presenter! But I can’t tear myself away). I even started myself an account on a diet site to track weight loss and calories for fucks sake.

I couldn’t really be bothered trying to fight the thoughts so haven’t eaten much. I did end up breaking and eat ten sweets and then spent five panicked minutes trying to find out how many calories were in a single Skittle (about 4.6 apparently). Again… for fucks sake.

Not a great day overall. But I’m spending the evening trying to distract myself, playing with the dogs etc.

Monday, 14 March 2011

American π Day

It's one of my favourite days of the year. 14th March, the 14/03 or, if you're American 3/14. Or even better 3.14 - mmmmmm pi.


There's not many irrational numbers that I like. They normally bother me tailing off into the distance without an end in sight.

File:PI.svg

But I like pi because it fits in with the date the 14th March. And also because I like ratios. There's just something about dates that I can break down into ratios that I find a lot less stressful. The only thing that's better is dates that can be re-written as binary. Sometimes the very numbers in the date can have a huge affect on whether I have a good day or a bad day. Though I can balance this out by booking appointments at specific times to create further patterns.

And finally a word from Weebl and Bob (couldn't seem to link to the proper site so have linked to Youtube - but you can see the original video here)

Sunday, 13 March 2011

Scared

My weights down a little bit this weekend. But I think it's partly as I got very drunk on Friday and was physically sick all day Saturday - so weight change is pretty much just dehydration I think. Apparently I will never learn what my limit is for drinking and won't stop until I have borderline alcohol poisoning. Today was a lot better, at least, I've stopped throwing up. I feel quite shaky and achey. But the weather was nice so I went for a long walk around some lakes near where I live. The dogs came to and they had a lovely time (you could see the epic dog joy in their faces - is there anything happier than dog joy?) I've also managed a bit of life admin today - paperwork etc, not fun, but at least I've been slightly productive.

I've only purged once this weekend (Friday night). Although, what with being a shaking/vomiting mess on Saturday I couldn't even look at food and my stomach rapidly rejected even the small sips of water I tried to offer it. (In my head hangover vomitting is apparently acceptable - though probably just as grim - in comparison to self-induced vomitting). Today I've eaten what amounts to a lot for me and I've managed to fight the urges.

I'm seeing my psychiatrist later this week. Partner has managed to secure a couple of days working so he won't be there - he's going to write down a few of his concerns (forgetfulness/obsessive behaviour) so I can discuss them with my doc, though it would be easier if he was there with me. In good news however he definitely feels I've been less of a space cadet since reducing my antidepressent dose and I haven't noticed a change in my mood. Part of me is glad he won't be there because it means I'll be more likely to talk to my psychiatrist about the eating problems. In my head I was already using him being there as an excuse to not bring it up. I didn't manage to talk to GP about these issues because partner was there and I think I've accepted the fact that I do need to get some support with this. I've been actively trying to fight the eating disorder by myself now since the end of January. Yes, the weight loss has slowed down and yes, I'm purging less than I was, but I'd be decieving myself if I said that I now think I can stop this without something more. I've lost 12lbs since starting the blog and I'm purging probably 5 or 6 times a week. And the thoughts haven't really gotten any easier - and as someone pointed out the other day, they're just as much part of the disorder as the actual behaviours.

A huge part of me doesn't want to ask for help... I'm scared. I'm scared about telling people in real life and them judging me and thinking less of me. I'm scared about my friends/family finding out and it changing our relationships. I'm scared about it having an impact on my job. I'm scared about asking for help and not being taken seriously (because I'm not sick enough). I'm scared about letting other people in on what I'm doing because it feels like losing control of the situation. I'm scared that if people know I won't be able to use purging/restricting and how I'm going to handle all these feelings if I don't have that to fall back on - would I just end up self-harming again instead? I'm scared about what will happen if I ask for help and I still can't get better - at the end of the day even with support it will still be up to me to recover. What if I can't do this?

Friday, 11 March 2011

Thursday, 10 March 2011

On being surrounded by people on diets

The last couple of days haven’t been great in terms of eating/purging. (Though I haven’t purged so far today!) I think because I have been trying so hard to eat meals and not restrict/purge I’ve not been losing as much weight (the weight loss has slowed down a lot) and this is triggering the thoughts to get worse. I try to not get on the scales... but sometimes I just can’t help it. And without explaining to partner the “why” I should really throw out (or hide) the scales they are just going to sit on the bathroom floor and stare at me. And I guess my antics at the weekend haven’t helped with mood either... though I’m starting to feel a lot better now. So maybe this is just a blip and once my serotonin replenishes I’ll rally the forces and fight the thoughts.

On another note it’s driving me mad the number at people at work who are asking me about my diet, asking for tips and congratulating me on how much weight I’ve lost. Pretty much all the ladies in the office are on on/off diets. They’re not particularly great at them... in that they starve themselves all morning and then give up and eat snacks all afternoon. “I have no idea why I’ve not lost weight!”, “because you’re still eating over the recommended daily amount of calories”. In a screwed up kind of way part of me feels almost smug – that I’ve succeeded. That I’ve lost weight and they can’t/won’t/haven’t. Not sure if smug is the right word – just the feeling that I can finally do something right, even though I really know I’m not. The office environment is sending the thoughts I’m dealing with into overdrive. When people go and get their lunch and pick like birds over their tiny salads it just makes me feel bad for actually eating lunch even though I know I do need try and maintain my calorie intake. But I can’t avoid them. I trying to put on headphones and listen to music. But it’s a bit like when I was a smoker. If I was trying to quit and around other smokers, even though it made me dislike myself, I’d still not be able to keep away from the group trips out to smoke. I only finally managed to quit when I changed my environment. But without everyone at work knowing about what’s going on I don’t see how I can do that. I can’t not go to work. Firstly I need the money and secondly I’m a complete workaholic.

Tuesday, 8 March 2011

Individualised Medical Care

In my former life (the life before I couldn’t cope with stress) I used to work in pharmacy research. The way pharmaceutical research and development works is a multistage process.

The initial “preclinical stage” is where small pharmaceutical research teams (e.g. at universities) do research e.g. lab and animal studies to check safety/bioavailability etc. Articles will be published and conventions will be attended and hopefully, if they’ve discovered something interesting, it will manage to enter the next stage of the process. I think an estimate is that for every 1000 compound looked at only about one will enter the next stage of the process.

The next stage is the clinical trails phase. There are several stages/phases starting with healthy volunteers and then moving onto larger trails on actual patients. This process is very expensive (millions upon millions of pounds) and is only really carried out by the Big Pharma™ companies. And then there are usually final steps (an “approval stage”) to be jumped through for approval depending on the country/region. For every five to start through clinical trails/approval stage it is estimated that only one will make it to final approval and release as a drug.

So maybe one out of five thousand potential chemicals evaluated might make it to the point of being released as a drug. Generally what happens is that the preclinical research is done by small research companies/universities/spin out companies and then Big Pharma™ will buy the rights for any promising looking research (with or without the original researchers being taken on in the continuing process as advisors).

This (after pre-clinical, but before or during clinical trails) is often the stage that research gets buried. There may be many good reasons that a potential drug would get stopped at this stage. It might be that there are other, probably better, drugs in development. There may be other valid scientific concerns. However if the Big Pharma™ company are concerned that a new drug will put a current money-making drug out of use they may buy the research and sit on it. For example there is commonly believed to be several preliminary drugs that would cure Alzheimer’s Disease, but the profits in curing a disease using a short-course of medication it may not be out-weighed by the current profits in treating Alzheimer’s for many declining years of a persons life, so as yet there is no financial incentive to continue with the development of these drugs.

Another category of drug that gets ignored in terms of development is a drug that would only target a small subset of a clinical population. What Big Pharma™ like are drugs called Blockbuster Drugs. Blockbuster Drugs are the big money spinners. Generally a drug becomes a Blockbuster Drug if it’s widely clinically used (by doctors/prescribers) as a standard drug to use for prevalent conditions that often require long term treatement – a lot of Blockbusters Drugs are currently things that treat blood pressure/blood clotting/heart problems/cholesterol i.e. is generally works for a large segment of the population. An important addendum needs adding to this definition however – prevalent conditions, but mostly this only applies to conditions prevalent in the developed world. Obesity, heart problems, pulmonary conditions are on-going problems in richer (older/fatter) nations so drugs that treat these conditions well across a wide spectrum of the population become Blockbuster Drugs. This is the same reason you’ll see psychiatric drugs occasional slip into the Blockbuster Drug lists – mental health conditions are relatively prevalent in the developed world and people tend to take these drugs on the long term, as such Big Pharma™ are happy to oblige in the provision of a whole variety of drugs. (Cynically, especially if the drugs make you put on weight and end up on more drugs </snark>)

What Big Pharma™ doesn’t like are conditions that aren’t common in rich nations, or uncommon conditions, or small genetic subsets of prevalent medical conditions that don’t respond to the standard drugs. Take cancer for example, if you have a common genetic subtype, of a common cancer, that responds well to drugs then you may have a good chance of recovery. Something like testicular cancer has a 90% plus survival rate, if it’s got the “right” genetics, even if it’s caught at a late stage. But if you have an uncommon cancer – say for example Neuroblastoma, a horrendous cancer that affects predominately very young children, where there may only be few hundred suffers worldwide - then Big Pharma™ just aren’t really that interested in helping (and survival rates are as low as 20% 5 years after diagnosis). Unless you have a fashionable illness you're kind of screwed.

Fundamentally, like a lot of things in life, it comes down to money. Big Pharma™ want to make money and they do this by focusing research and development on drugs that they think will do that – and by blocking the development of drugs that may risk the money making potential of their current catalogue. This is great for them but not great for health care as a whole. Arguably all medical conditions will have a genetic component at some level. And every person is an individual – created from their own personal genetics/environment. Drug companies want to find one drug to treat an entire clinical population, whereas the reality of what disease is/humans are, humanity would be better suited to finding a way to one drug tailored to fit that person/disease interaction.

I’ve talked about this from the point of view of drug development seeing as that’s what I know (well, knew). But maybe this logic can be extended to other aspects of health care. Surely the future of medicine should lie in determining the interaction of medical condition with a particular person and applying an individualistic approach to medical treatment. A person would have individualised/tailored drugs/therapy designed specifically for them as an individual and their particular version of their medical condition.


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NB: Emotionally I'm not in a great place right now so I’m not even sure I managed to say what I wanted to say and may continue this theme another day. Numbers I’ve quoted in this post are from memory so don’t jump at me if they’re not exactly right by current research. I left pharmaceutical research in 2007. This was a bit of a flow on consciousness after reading this post by RuftyRoo II.

Monday, 7 March 2011

There's a hole in my soul

I’m feeling absolutely horribly awful today. But it is, I’m sorry to say, one hundred perfect totally self inflicted. We spontaneously got a late train on Friday to stay with some friends. As we arrived late, Friday was fairly restrained and Saturday was a late lie in. I knew there would be a lot of drinking this weekend so I hardly ate anything on Saturday daytime (a boiled egg and a piece of toast). On Saturday we went out walking and around their city, so I avoided eating by saying I’d grabbed a sandwich earlier. We stopped in a pub for the afternoon and I started drinking then. My alcohol tolerance is through the floor – a combination of medication and losing weight. Two pints later I felt hammered and it triggered me off on a bit of an alcohol binge. Though I did drunkenly eat half a piece of pizza because of that – so at least I ate something else on Saturday.

I carried on drinking all Saturday afternoon and then we started getting ready to go out clubbing for Saturday night. We had some speed which was left over from a party at Christmas and had decided to take that while we were out. I love clubbing, I just love getting lost in the music and dancing like a crazy person. But I’m fairly socially inept and it does make feel awkward trying to make small talk with people. So I figured the speed would help and also keep me going for the night. And once I start I couldn’t really stop myself and ended up taking some random legal highs (I’m guessing) at an after club party. Finally stopped drinking and sobered up about midday on the Sunday and then had to train it home to collapse in bed. Felt hideous after drinking so much, so again didn’t really eat. And I didn’t take my medication on Saturday (was too drunk) or Sunday (forgot), so I’m blaming the “wanting-to-climb-out-of-the-window” misery and “are-you-staring-at-me” paranoia on the rebound affect of messing with psychotropics. And I’ve got incredibly fun intermittent palpitations and hot/cold sweats thrown in. Oops. Drugs, are apparently bad, kids!

I’ve always been fairly honest with my doctor(s) about the issues I have with drugs (well, actually, I’ve been honest about what I take and when I’ve taken it, but I don’t have an issue with it, more that my doctor does and I’m unwilling to change). From what I’ve heard/read about substance abuse it’s not that uncommon with mood disorders. I’m not really sure which came first. I got into drugs around the same time I started suffering from depression (I was about 14). For me I’m definitely worse with drugs when I’m in the middle of a mood episode. Usually I will take the odd bit here and there like this weekend and although I’ll feel rough afterwards it’s not really an emotional crutch and no different from drinking. Regular drug use is usually an indicator to me that things aren’t all that great and often one of the first signs of a mood change. Highs tend to be worse as I tend to lose sight of the fact it’s probably a bad idea and this can spiral if the drugs trigger worsening of mood (speed is fairly bad for this one for me). When I first started seeing my psychiatrist last summer, when I was hypomanic, he asked if he could have some assurance that I would at least try to take the medication as prescribed and I told him that I would – but that I couldn’t start taking them until Sunday (it was then Friday) as I was going from my appointment to a party and was intending to take drugs and didn’t want the antipsychotics to limit the effect of the high. (At least I’m generally honest, if not particularly insightful about why this wasn’t a great idea). When I’m down I tend to take drugs to drown out the feelings, as an ill-advised form of self-medication – last time I was depressed in November/December I was taking ketamine on a daily basis as it gave me a brief period of not being me (and pretty floaty hallucinations).

I’m not really sure why I’m writing this - distracting myself from my total incoherence to function at work right now. This weekend was the first time in ages (since New Years Eve) that I’ve taken anything. So it’s not as if it’s a massive problem. I think just maybe next time I get offered stuff at least I might cast my mind back to this post and remind myself how awful the come-downs are and maybe, just maybe, not take anything. Given the abuses of the weekend, however, I haven’t really lost any weight, so I’m obviously made of sterner stuff than I thought – even if I currently feel like a lump of pain drenched in wibbly paranoia-jelly.

Sunday, 6 March 2011

A to Z

A = Age : 28
B = Bedsize : double - but I have to share with partner and usually two dogs as well.
C = Chores you dislike : gardening (and specifically having to clean up the pups mess)
D = Dogs : 2 small terrier crosses
E = Essential start to your day : cup of tea and the BBC news website
F = Favourite colour : black red or green
G = Gold or silver : silver
H = Height : 5'7''
I = Instrument you play : flute grade 8, piano grade 3, bit of recorder and domra (Russian instrument)
J = Job Title : office work
K = Kids : yes please - two ideally, but waiting for a couple more years before trying. It won't be the end of the world if we can't though
L = Live : UK
M = Mother's name : not saying
N = Nicknames : not saying
O = Overnight hospital stay : Several. As a kid I was born prematurely, the got run over as a teenager. Couple of adult stays for suicide attempts/mood disorder.
P = Pet peeves : thing not being arranged symmetrically, lights being left on, background noise
Q = Quote from a film : Papillion
The rule here is total silence. We make no pretense of rehabilitation here. We're not priests, we're processors. A meatpacker processes live animals into edible ones. We process dangerous men into harmless ones. This we accomplish by breaking you. Breaking you physically, spiritually, and here. Strange things happen to the head here. Put all hope out of your mind... ...and masturbate as little as possible. lt drains the strength.
R = Righty or Lefty : Righty
S = Siblings : Two - brother and sister, both younger
T = Time I get up : 7am on work days. Varies on weekends.
U = Underwear : black boring knickers
V = Vegetables I don't like : not many, parsnips I guess taste a bit rank. Generally love veg.
W = What makes me run late: sleeping in and being disorganised
X = X-rays : a couple
Y = Yummy things I can cook : veggie sushi, veggie lasagne, lots of other veggie dishes. Not very good with sweet stuff or Chinese food.
Z = Zoo animal : bats

Friday, 4 March 2011

Do You Realise?

For various reasons it has been a very bittersweet Friday. There are life events that mark your passage through the world, and retirement is definitely one of those. Retirement on this occasion was a happy event - at the end of a full working life and the years ahead look like a time that will be spent with loved ones and on some much anticipated favourite activities. But I will miss my colleague so much. It feels like a loss. This song by The Flaming Lips, called “Do You Realise?” came to mind.
Do you realise
That you have the most beautiful face?
Do you realise
We're floating in space?
Do you realise
That happiness makes you cry?
Do you realise

That everyone you know someday will die?
And instead of saying all of your goodbyes
Let them know you realise that life goes fast
It's hard to make the good things last
You realise the sun doesn't go down
It's just an illusion caused by the world spinning round
 

Eating hasn’t been great today. I went out for lunch with colleagues to celebrate the event and there was set courses so I couldn’t avoid eating. I ate far more than I felt comfortable with and ended up purging. And I developed a headache which doesn’t seem to want to go away. Though at least it is Friday and I'm going to try really hard to stick to eating planned food for tonight and not purging.

Thursday, 3 March 2011

Rubix Cube

The Rubix Cube was invented in 1974 by a Hungarian sculptor and professor of architecture called ErnÅ‘ Rubik. The cube is a 3D mechanical puzzle, with six sides made up of nine square – the outer eight squares can be moved by rotating the layers of the cube. The aim is have each side made up of nine panels of the same colour.



When I was a kid I had a Rubix Cube and never managed to solve it. Out of frustration and a desire for order and neatness I broke off the outer squares (I think I did this by peeling off the coloured stickers) and reattached them in the “correct” order. I “fixed” it. Well it looked fixed. *shifty eyes*.

I grew up and put away my childhood toys (well, most of them). But then I received a Rubix Cube as a gift in the New Year. I was going to keep it in perfect and pristine. But alas it was not to be, as a ‘friend’, knowing my obsessive preference for ordered patterns, mixed up the colours while I wasn’t looking. I’ve spent the past few months staring at the cube – planning my moves and imagining techniques for getting the squares back in place. I’m very reluctant to pick it up and rotate the panels without a fair chance of success. I’ve picked it up once or twice and tentatively made a few twists and turns. Brief forays into the mechanics of the cube. A few pieces have been manipulated back to perfection. I’m scared of making the wrong move and jeopardising the fragile beginnings. I am fairly prone to this pattern of behaviour. I’m cautious and reticent to change. Partner would refer to this as stubborn and “being difficult”. From an outside perspective it can come across as laziness or procrastination. If someone suggests a change (e.g. a new method of doing something, a new way of rearranging the living room) I do need to mull it over (sometimes for months/years) in my head before either becoming comfortable with the change and acquiescing or deciding that it’s an acceptable pathway to take.

Since starting this blog I have overall decreased the amount I am purging (albeit only slightly i.e. I’m no longer doing it everyday) and I’ve definitely become a little bit less rigid in what/when/how I will eat. The weight loss has slowed down. I’m still losing weight, however, still purging most days and I’m still very much dealing with the obsessive/intrusive thoughts and feelings surrounding food and this area in general.

I don’t know if the improvements are superficial – akin to pulling off the Rubix stickers and reattaching them. Am I faking something that it ostensibly looks like the start of recovery in a mission to con(vince) myself into thinking that I’m getting better and fighting this! Am I tricking myself so I’ll ignore the fact that in some ways I’m still actively eating disordered? So the eating disorder can cling on as long as possible but “under the radar” and with out my seeking external help or intervention. Or maybe the slight improvements are a sign of a little seedling of genuine recovery. Am I just sticking true to my nature and being cautious, taking things slowly? The latter isn’t impossible as pretty much every time I’ve struggled with eating and weight loss in the past I’ve managed to figure my own way out of it. The only psychiatric treatment I’ve ever really received has been for mood disorders – and generally the times I’ve struggled with eating, I’ve also been struggling with my mood, and the eating problems have become easier as my mood has stabilised. Maybe it will just take me some time to feel comfortable with changing and slowly, but gradually, I will get there.

Either way I hate how difficult it all it and sometimes I feel like giving in and smashing the Rubix Cube to pieces - both literally and metaphorically.



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